First, ADNI participants will complete online surveys and memory tests. Some participants may be asked to participate in additional tests such as blood draws or brain imaging (MRI and PET scans). These are done in-person at an ADNI clinical site. Participants repeat these tasks over a 5-year period. This helps researchers study changes in health, lifestyle, and cognitive function over time. The results can help us find better ways to track changes in brain health. This can lead to better diagnosis and treatments of Alzheimer’s disease. By joining ADNI, participants may find out they can join and help other studies too.
ADNI shares the data we collect with other researchers. Sharing helps make tools for Alzheimer's diagnosis and treatment better and faster. We take out personal information before we share.
Your privacy is our top concern. ADNI only shares ‘de-identified’ data. Identifiable information, such as your name or contact information, is not shared with outside researchers. If you choose to join ADNI, the information we collect from you will be given a unique code. Your data is then linked to this code before being shared with researchers. Sharing research data speeds up the discovery of treatments for Alzheimer's and other brain diseases and disorders. Click here to read our privacy policy.
Comments
0 comments
Please sign in to leave a comment.